Sunday, August 07, 2016
Monday, October 20, 2014
We manage to get an appointment @ IJN, tomorrow 21 Oct. The ambulance will take us there escorted by a doctor & a nurse.
|Right after 2nd dose IVIG treatment habis ... |
dah boleh duduk sendiri & main-main.
Owh that wafers tu, utk buat main kira-kira je
|Eventhough demam dah subside, ulcers satu mulut|
masih blom baik ...
so still no consumption of food and drinks ..
dengan nenek, still nak berkepit
Friday, October 17, 2014
Her temp was around 37.6 and stayed under 38 deg celcius all morning. So she slept all morning untill the visiting hours started.
Around 7:00pm, her temperature shoot naik ke 38.4 again. So tunggu till the end of the 36th hrs, the MO will make the decision samada kena start 2nd dose IVIG.
During the specialist visit in the afternoon, we heard a bad news. From the result of an Echo test, both Khalisya's coronary artery are dilated, and this is not a good sign. The MO will set an appointment with IJN for a 2nd opinion & Khalisya was diagnosed as Kawasaki Disease with bilateral coronary dilation.
I did some reading over the internet. Coronary dilation for KD is not a good sign at all. I'm hoping for a better result from IJN.
|Practical doctors in da house|
|Kalau dah demam, asyik nak berdukung jer ....|
|Demam dah tak kuat macam before tapi|
temp stayed above 37.5 kekadang cecah 38.6
Catz: Stay strong kakak ...
Thursday, October 16, 2014
|Sleeping ... with her eyes open.|
|Crying for pain ...|
Tuesday, October 14, 2014
I went to work in the morning.
Mak call around 4, telling me that si kecik asyik merengek & nak dukung all the time.
So, I got off work after 530 and we went straight to a specialist hospital .... again. While waiting, khalisya merengek je, macam in pain. Duduk salah, dukung salah, semuanya salah.
When we finally got to see Dr Arbaiyah, she was very consent of Khalisya's behaviour, as if, she's in great pain... restless.
Her lips was so red. Her tounge was fuĺl of ulcers. I heqed Dr Arbaiyah mentioned strawberry tongue and some weird disease.
I was not feeling at ease at all, even the specialist was very consent of her condition.
Finally, Dr Arbaiyah said, "kita warded mama". I can't agree more. She needs special care since at home all of us don't know what to do.
Unfortunately, the rooms at the specialist hospital was full that night. She wrote us a referal letter so that we can go to HPJ. I opened the letter, and there it was, the unknown disease that she suspected. Kawasaki disease.
Nobody around me know what it was. I knew then, this is not a regular fever, and I don't want to even google about it. I'm trying to stay positive.
Khalisya was warded in HPJ tonite. No diagnose was given since there's no specialist.
No drugs was given to her tonite, not even a drop of PCM. The nurses recommended sponging untill they have the instruction frm the doctora.
Her fever shoot up to 39.6 tonite, and still nothing was given to her to subside the fever.
I can't really sleep tonite, her temp was so high I'm afraid she will get 'tarik'.
Monday, October 13, 2014
Tak sampai hati rasanya nak pergi offc. Dah buat sponging all nite pun demam masih shoot sampai 38°.
Dah 2 kali ke klinik biasa. Today nak bawak ke specialist, jumpa Dr. Khairul or Dr. Arbaiyah.
Rashes dah start banyak kat bahagian perut & pelvic area. Kesian si kecik ni, merengek je.
Dr prescribe antibiotic augmentine & supp. Selalunya lepas makan antibiotic, demam akan subside.
After the thrid dose, demam masih sama lagi.
Catz: trpaksa korbankan captivate & edge training .....
Sunday, October 12, 2014
2nd day, rashes around pelvic area dah nampak. Quiet a bad rash. No wonder she's all cranky and moody. The only good thing was she drank a lot of water.
3rd day, bibir nampak kemerahan. She refused to drink or eat.
Clinic visitation chronology:
1st day - regular poliklinik
2nd day - hospital pakar (regular clinic)